Over the weekend Matt's mom and dad came for a visit. It was great to have them here, and for them to see Abby. They haven't seen Abby since she was in the hospital so it was nice that they could hold her and love her as much as they wanted! Of course Roxy was excited because she loves to play around with grandpa(and his slippers).
Yesterday-Wednesday-We went back to Chester County for a quick check up and to get Abby's weight. Matt and I always bet on what her weight will be-he always guesses really high, and I guess in the middle, but we were both wrong. Her weight was 6.13! (I guessed 6.12 and he guessed 6.14) The Dr was thrilled that she is still gaining so well, even with a few rough days after her shots. So Abby is off of the Oxygen for good-YAY!! It's such a relief! We also had Abby's monitor downloaded on Monday so the doctor could see if she was having an issues or alarms-which she wasn't-but they can't just take our word for it. As soon as the results come back-for some reason they ship them to Florida and it takes a week for someone to read them, and if they sent it to Abby's Dr it would take a few minutes-this stuff makes me CRAZY!! Anyway, as soon as they read them, they'll see she's having no alarms, and then we'll stop all of her meds, except vitamins, and in a few weeks we will be rid of the monitor. The Dr wants to keep Abby on the monitor while the meds work their way out of her system to make sure every thing's OK. We are so excited to be making such wonderful progress, Abby really is a tough little girl and as annoying as of this stuff is for us, it seems Abby is equally annoyed! We have also been feeding Abby two bottles a day of breast milk fortified with formula for extra calories that she can't get from just breast milk. The bottle feeding hasn't been fun at all, she is fussy and crying through the whole feed, while breastfeeding is perfectly fine for her. We told the Dr and she said to just breastfeed and they'll do a blood test in a few weeks and make sure Abby is still getting everything she should. She said Abby might be showing a sensitivity to the formula and if it's that bad it's not worth it. It is nice that Matt can give her a bottle at night so I can catch up on sleep, but now he gets up and helps soothe her when she won't settle, which is just as good. Sorry for such a long update, but it's been a while! Our next hurdle is CHOP, we go no Tuesday and meet with the liver specialist and the surgeon and hopefully we'll have a plan. We will certainly update everyone after that appointment, even though the only outcome might be some more appointments! I hope everyone is doing well, here are some new pics of the little peanut.....
This is Abby going to the Dr, she always has her hands like that, it's so funny! -Oh-and if you're wondering why she always has the big ugly pacies, it's not because I like them-that's what they gave her in the nicu and I've bought a ton of cute, little, normal ones, but she refuses to use them, so we're stuck with these, at least I found a pink one!